Fundraising Events

Dr Fung runs Charity Ultra-Marathon to support "Angelman Syndrome" Patients' Families

BACK

This ultra-marathon is in many ways similar to the hard journey faced by those affected by rare diseases. It is a long haul, is both a physical as well as a mental challenge, and requires a lot of support. So many things can go wrong in this long and lonely process. An additional obstacle this year is the COVID pandemic that makes organizing a run and maintaining a charity a lot more difficult. Donations are drastically down by 70%.

So please consider donating and joining me to support the Hong Kong Angelman Syndrome Foundation (HK charity number 91/14491) that not only looks after those affected by this rare disease but also manages the One click Care which is a resource sharing platform for all persons with special disabilities, special needs and their families.

Help us build an inclusive community with your donation by cheque, direct bank deposit, Paypal or Alipay. Sponsorship even as low as $1 per kilometer ($162 in total) is welcome, and any higher amounts would be most appreciated. Details can be found online at
http://www.hkasf.org/en/donation.php

Dr. Anthony Fung
Consulting Surgeon, The Novo Clinic
Lecturer, The Jockey Club School of Public Health and Community Medicine, The Chinese University of Hong Kong

The Angelman Syndrome is an unusual congenital disease. It is one of the ‘rare diseases’ but the impact on patients and their care-givers is better described as an ‘orphan disease’. Because they are uncommon, care and community resources are lacking, so sufferers are often neglected by society in general. Therefore, support of rare disease patients and their care givers often has to rely on charities and patient support groups.

This is what moves me to support the Hong Kong Angelman Syndrome Foundation through a charity run, with the aim of increasing public awareness and to raise funds for them. I will be participating in the Ultra-trail Tai Mo Shan and running 100mile (162km) with more than 9,000m of elevation. This is equivalent to covering 252km on the flat, within a time limit of 42 hours. Being a runner of less than four years, this is no easy feat and is at least 60 percent more than the Trail Walker and anything I have attempted so far.

Date : Year of 2021

Time : Year of 2021

Venue : Tai Mo Shan

Enquiries : info@hkasf.org / +852 5125 8111